Wordy Wednesday

5 Minutes for Special Needs

My life may not be a bed of roses:-

but you won’t hear me moaning about autism, or if you do, I’ll just be mumbling into my socks, because I am a natural grumbler, but please don’t compare autism to cancer.

“Boufmom” who blogs over at “Who says 8 is Enough” is hosting a fundraiser for her “chum,” from May 5th to May 12th.

As she says:-

‘We are holding this blog party in honor of Tuesday Whitt, my friend Jess’ beautiful twin daughter who bravely fought and sadly lost her 8 month battle with stage 4 neuroblastoma in January of this year.
We are doing this fundraiser to hopefully raise awareness about this awful disease and to raise money for the Tuesday Fiona Whitt Foundation, where all proceeds go towards pediatric cancer research.’

As “Jess” says:-

‘bereave |bi?r?v|

verb ( be bereaved)

be deprived of a loved one through a profound absence, esp. due to the loved one’s death : the year after they had been bereaved | [as adj. ] ( bereaved) bereaved families | [as plural n. ] ( the bereaved) those who counsel the bereaved.

It’s ok to reach out to us. You are not bothering us. It’s ok if you can’t. If you don’t know what to say, “I’m so sorry you lost Tuesday” , with, or with out a hug, is all we need. It’s ok if you say something and I start to cry. You didn’t cause it. Death caused it. You didn’t “remind” me of her death, because not a second goes by that I am not thinking of her. Aching for her. It’s ok if you see us out and we are smiling and appear to be doing well. At that moment, we probably are doing well. Other moments we are doing so, absolutely, not well. It’s ok if you said the wrong thing or didn’t say the right thing because there is no wrong or right thing to say. There is no wrong or right way to BE when your child dies. There is no right way to do this. We’ll figure it out together.

Thank you for loving us.’

Personally, I cannot even imagine what that would be like.

Whilst it may seem a little daft to start another giveaway even before I’ve finished the first “one,” timing has never been one of my strong suits. There is a family I know who have returned to Ireland who have battled with cancer and won a reprieve so this is a topic quite close to home, yet far away.

So without further ado:-

so here it is…….

……..maybe this one has your name on it, so please consider whether this is something that has touched your life.

Yes, I will bite the bullet and ship worldwide if we don’t go bankrupt first.

We are approaching Mother’s Day in the United States, the second Sunday in May, it may be that you might be able to spare a thought for this “family,” I hope. This giveaway will end on the 12th of May.

Whilst you’re at it, again with Mother’s Day in mind, maybe we can extend a green hand to help families worldwide with “Oxfam America Unwrapped,” as that would be fairly high on my list.

Mom Blogs

If you need some light relief, then head on over to:-

“DJ Kirkby” over at “Chez Aspie” and test your brain power.

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14 Comments

  1. lime:

    my deepest condolences to your friend. it’s just against the natural order that a parent should bury a child.

  2. furiousBall:

    so sorry for your friend. ouch

  3. Voyager:

    I am in awe of what you have taken on and your attitude to it. My hat goes off…
    V.

  4. Jocelyn:

    What heartbreak.

    As counterpoint to their loss is the vivid life in your giveaway…

  5. killlashandra:

    It is sad, but at the same time perserverance is key. Kinda of like my iris that came up regardless of the fact the dogs chewed on them and the horses tried to trample them.

    Cute blue fishy pot BTW. :)

  6. Michelle O'Neil:

    I’m so sorry, and I can’t begin to imagine the grief a parent goes through when they lose a precious child.

  7. Kajoli:

    So sad to hear about your friend’s loss
    Are you talking about the book “I wish my child had ____” ( I cannot even type it )
    Really I was so outraged by it !!!
    One of my friends who read it quite liked it and opined that perhaps this was just a publicity gimmick from the publishers

  8. Tanya Savko:

    What a horrible loss. My heart goes out to them.

  9. Whitterer on Autism » Blog Archive » When first we practice to deceive:

    [...] add your name to the second “giveaway.” When first we practice to deceive [...]

  10. Joeymom:

    Um… I hope it worked.

    I am so sorry to hear of the loss. People who compare autism to cancer and say things that are basically “they are better off dead” or “may as well be dead” put up my blood pressure. I cannot imagine the pain of a lost child. I hope I never have to.

  11. debi b:

    Thanks so much for putting this up. On May 4th, please head over to the fundraiser blog and link this post up so that the readers will be aware of your auction (I will also have the paypal button available this weekend)

    I truly appreciate your support.

  12. Whitterer on Autism » Blog Archive » Warts and all:

    [...] The two giveaways are still open ready for your name either “here” or “here.” [...]

  13. Childlife:

    Maddy — Thank you for letting me know about this — I just stopped off at Debi’s and offered to join in auction a print (which I don’t have done yet so I better get busy!) Anyway, I think you’re a beautiful soul, one of the rare ones. My heart grieves the loss of Jess’s precious little girl.

    ~Michelle @ In the Life of a Child

  14. Childlife:

    Oh, and I’ll head back over to Debi’s now to make a Paypal donation before I forget…

    ~Hugs

    Michelle

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