Multiplying factors

I step out into the kitchen– my skills in the gentle art of persuasion begin flag – I need a deep breath before starting the other three double digit multiplication sums. I estimate that if it’s taken us one hour to complete six questions, it will probably take another five and a half life times, squared, to finish the last three.

My daughter peeks out at me from a curtain of hair, ear-buds firmly in place, so she yells in a friendly manner, “Wouldya like me to finish him off for you?”

“!”

“I mean…shall I help him with the last ones?”

“Would you dear?”

I can’t disguise the leaking pleading in my voice to my twelve year old.

“Sure. You make supper I’m starvin. And I am so sick of salad.”

What a deal.

What a break.

My savior, and dinner’s salvation.

Time to cook.

I beat about the kitchen but I can’t help but earwig as she takes charge, loudly, as her approach differs markedly from my own – it’s amazingly effective as she tells him how it is.

“Stop shoutin 4 x 7 over an over again! You know it alrighty. You know them all already. Y’just need to shut up and listen to yur brain.”

They sit on the sofa together; she – relaxed with soft open limbs – he – knotted like a pretzel, eyes squeezed shut, teeth bared, laboring to lay an egg, willing the answers to come. It’s agonizing, and that’s just the watching.

I stop watching and annihilate the potatoes.

I listen as her voice takes on a maniacal tone, “Just imagine that each answer is a tiny little chick and if you get the answer wrong…… the chick DIES!”

I drop the potato masher and dash into the family room, aghast, as my son tumbles off the sofa to writhe on the carpet. I open my mouth to speak and notice that he’s chortling, tears of silent laughter. I look to my daughter – “It’s o.k. Mom – it’s his favorite quote from the Simpsons.”

Multiplication 0-12 Flash  Cards


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Drug side effects

I park the walking wounded on the sofa and hand her a tablet because the icy-hot has failed to relieve her stiff neck as she lies on the sofa with a mircro-waved heat pad draped around her shoulders. I return to supper preparations for the starving millions and homework help for the tardy one.

Her younger brother, the only free agent, is always sympathetic to those with physical impairments, so he pipes up.

“Why is she?” as he pirouettes in the kitchen, because constant frenetic movement is an aid to speech production.
“Slept in a draught I suspect.”
“It gave her wind?” he asks, as he throws himself onto one counter and then bounces off the next, pin ball style.
“Um… no but it was a bit windy in the cabin so that’s probably why her neck hurts now.”
“Why she has it?” he says, pogoing the entire length of the kitchen, first forwards then backwards.
I try and think of other ways of packaging the essential elements of the message – sleep in draught, neck exposed to the cold, camping cabin chilly – but I’m struggling… “Er… she..the muscle…”
“No. Why she burps a lot?” he adds in time with his full-body jumping-jacks.
“I don’t think she does much, not by comparison to you two at any rate.”
“But the pill?” he continues, spin to the right, stop, spin to the left, stop.
“The pill is for pain.”
“They don’t make you burp a lot?” he says swinging his head down between his parted legs to speak to me upside down, his hair brushing the floor like an upside down cuckoo from his clock.
“She doesn’t have indigestion she has a pain in the neck.” The emphasis is purely accidental.
“Oh.” He stops abruptly, as if I stole his key. Clearly my tone is too sharp and windy with irritation.
“But it says,” he bleats as he peers at the jar, “Oopsie. Oh no it doesn’t,” he whispers. “Never mind!” he yells at fifty decibels charging from the room.

But I catch him mid dash, “it doesn’t what?”
“I thought it said ‘I burp often,’” but now I see it doesn’t.”
I turn the label around, run my eye over it again, “Hmm…yes, I can see how you might mis-read Ibuprofen.”


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Barbara’s Blog Carnival -Childhood Expressions

Which “childhood expression” to “pick” I wonder?

So I thought I’d change the focus from my typical topic to an atypical one.

The first comes from my elder daughter, back in the days when I was a single parent when everything was overwhelming. [hindsight really is a gift!]

Back then she was growing up much too fast just like many children of divorced parents. We read a great deal together, from the board books, baby books, picture books, onwards and upwards to independence. I had never liked ‘baby talk’ and so I used the same words and style of language that I do with everyone else. She had a great vocabulary as is so often the case when children are surrounded by adults: my parents, my siblings, my friends.

The details are hazy, so many years later but I remember that feeling of cozy harmony, the intimacy between parent and child when a family consists of only two units. If a parent is solely responsible for a single child a devotion develops such that communication is instinctive, words are hardly necessary – a separate world of understanding.

Madonna and child – perfection.

Maybe it was bedtime, perhaps we were at the beach, or playing hang-man? Yes! Hangman, all those years ago…

“That can’t be right dear?”
“It is.”
“I think you’ve left the ‘h’ out by mistake.”
“It doesn’t have an ‘h’.”
“Weren’t you trying to spell Bahamas?”
“Bahamas? No, it’s bajamas.”
“What’s bajamas?”
“Bajamas… you know… you wear them when you go to bed at night.”

Now if we’d lived in America then, no such confusion would have arisen, that’s why we stick to PJ’s now.

A few decades prior to this exchange, I had my own mishap with my mother, along quite similar lines. Being the dunce of the family I progressed from comic books, to Enid Blyton, to Agatha Christie and I’ve been stuck in ‘whodunnit’ mode ever since. On one particularly balmy summer’s day, [in England!] I was lying on the grass at my mother’s feet, devotional dog that I was, as I read the latest blood curling thriller some 45 years after it was first written. My mother sat in a deck chair, knitting, as only mother’s can, as she fought with a particularly complicated lacy pattern, which involved a great deal of counting and under breath cursing. Yards of fine yarn were testament to the unraveling of mistakes.

“Mum?” [I was then English]
“Hmm?”
“Can you tell me what this word means? I see it on nearly every page.”
“What is it?”
“Determinded.”
“Determinded? I’ve never heard of it.”
“Oh.”
“Can’t you guess from the context?”
“No.”
“Read me a sentence.”
“Hermione Herringbone was determinded to defeat her tormentors.”
“Are you sure it isn’t…Spell it for me.”
“D.E.T.E.R.M.I.N.D.E.D.”
“Really? How odd. Here, pass it over, let me take a peek, hmm, lets see…’Daphne Dalrymple was …’ that’s not ‘determinded’ that’s ‘determined.'”

What can I say? It’s genetic.


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The most useful PEC of all time

Picture Exchange Cards, flash cards and social stories – I tend to use these terms interchangeably – the format isn’t important, it’s the underlying message, without the need for words which is key.

Time is an abstract concept for youngsters. It may take a while to master it completely. Meanwhile, the practical day to day, passage of time, may prove problematical. As adults, we often forget that time passes very, very, very slowly for children.

Hence, if you are designing a social story for your child to encompass a new event, outing or pursuit, it’s as well to prepare in advance and include quite a few ‘time’ PEC’s to help our children manage the unexpected.

The unexpected may come in many forms –

– waiting while everyone gets out of the car if you’re in a group
– any preparatory activity by the parent such as locking the car, gathering belongings, setting up a push chair, fumbling for change to pay the meter
– a ‘delay’ while you pay the entrance fee

It’s basically anything that isn’t the ‘on task’ activity which means there is/are delay[s] or waiting involved.

As with all ‘new’ campaigns, timing is critical. Explain how it works first, in advance, many times, then pick an occasion when you can guarantee success, when you’re absolutely certain they will wait for a very short time, no more than a few minutes so they can experience success and relief = times up, no more waiting. This means that short of an earthquake or other natural disaster, their waiting time will be minimal.

We experienced considerable success when we later paired ‘the waiting period’ with a stop watch, the kind you can hang around your neck. Minutes of waiting could be exchanged for extra minutes at a preferred activity, later.

But be careful how you adopt this with some children, those children who exhibit obsessive traits, as this approach can swiftly morph into a strait jacket for the parent – but that was just my mistake.

Before I knew it, a symbiotic relationship developed – a run of bad luck for the me: no cash for the cafe latte, the credit card that won’t swipe, an error in the pin number, ditto with the duplicate, scrabbling for coins amongst the dust bunnies under the seats, the coffee spill which gums up the automatic window function, the refusal to be transported in a car like a wind tunnel, lengthy minutes squandered, static, as I explained the need to get back on track, a waste of breath, words and energy……..time racks up pretty quickly.


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Sensual olfactory assault

It’s a recurring theme. I’m oblivious early in the morning, still dressed in my robe, as we are, just for a change, behind schedule.

Wednesday’s the half way mark of the week, and therefore attractive to some, because it’s also a half day. The weather forecast predicts coldness and some of us, even thin-blooded Californians, are more susceptible than many.

My son looks through the window to see movement of trees and quivers with wide eyes. His pale, exposed, little, shell-like ears seem to shrivel as his palms cup them for protection from the buffeting wind.

What a pity his new jacket lacks a hood.

As he leaves to go and curl up on the third stair I wonder how on earth we’ll be able to transport him from house to bus, a distance of fifteen yards with several metres of 40 kph blustering winds?

It’s not an easy calculation.

I remember the hat from England, a Plymouth Argyle Football Club supporters’ knit cap. It’s green – the wrong color, but it does sport an icon of a soccer ball and a cat in mid leap. Since felines of all descriptions find favor lately, I decide to give it a go.

I grab a Sharpie in the kitchen and write his name inside. Within seconds I’m through the kitchen, past the dining room, round the sitting room, the hall and two steps up to entice him. I can’t hear the bus engine through the closed window, yet, but it’s on the way, very shortly. I play teasing temptress as I lean over him before ramming it on his head, with my hands pressing the fabric against his ears, capturing the warmth.

“Wot is dat smell!” he asks – more of a statement than a question. I find it hard to recall my itinerary with any degree of exactitude. I examine the options over a period of more than two hours; vat of espresso, unwashed after a hot night, Dial dish wash soap, 409 – killer the germs – solution, new Clorox toilet block, trash bag contents and recycling today, hand soap, laundry soap, as it’s best to start early, mouth wash to neutralize coffee before kiss, is there some kind of preservative in the pristine new hat?

All in all, it’s a veritable nightmare of toxic waste – a cocktail of chemical smells – but which one would predominate……
“I think perhaps….its…?”
“I always love dah smell of Sharpies Mom!”
“!”

p.s. How to have a ‘hot night’ when you’re all on your own with your spouse many thousands of miles away, abroad?

Go upstairs, turn off the lights, get into bed and put head on the pillow, pass out, awaken intermittently to find a big, fat, furry, demented orange cat on your head. Bark at cat. Fall asleep again. Repeat.


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You can lead a horse to water

I enjoy every second of my twelve-minute lie in and then dash downstairs at 6:12 a.m. – chaos.

Start calculations – need to arrive at 11 and it’s a 38-minute drive – allow an hour in case of stops, emergencies, getting lost time and Saturday traffic. 5 to 60 minutes for breakfast and clear up. 30 to 90 minutes for dressing to include, socks, shoes and teeth cleaning. 10 to 25 minutes toileting, jackets and entering car with seat belts buckled. Equals 3 hours and 55 minutes – loads of time and time to spare.

It was a definite possibility three months ago so I jumped at the chance – we prepared just in case. Horses are just like dogs, but bigger. Every time they sat on Thatcher, I’d trigger a meltdown, deliberately – ‘look at you! If you can ride a dog a horse will be easy!’

They’ve conquered ‘fear of dogs,’ and they’ll conquer ‘fear of horses.’

Both the boys have left their warm jackets at school for the weekend – normally this wouldn’t be a problem, seeing as how we rarely venture far from home, and when we do, it’s more likely to be around mid-day when the chill has burned off – today we head out to the wilds of Monterey where they have weather and mud.

Dig out second, old pair of shoes for them both, select favorite snacks as bribes, drinks, check first aid kit, and pack all possibly emergency supplies in the hope of successfully surviving as solo parent during an hour’s drive. Grab camera at the last minute – if there is one single moment of joy I shall capture it for the record.

Watch a woman outside on the road running for her life, otherwise known as jogging – if I could get someone to watch the children, I would do likewise.

We were offered two places at the therapeutic riding center a couple of years ago – the boys weren’t ready. We were offered places again last year – just before the budget cuts. So here we are, third time lucky, possibly.

In the car we try to listen to a CD of Horrid Henry – ‘The Hike’ – written by Francesca Simon and read by Miranda Richardson,* over the din of the boys who scream in the back. I allow my daughter a reprieve, up in the front passenger seat now that she’s only an inch shorter than me. I keep an eye on her – self wrapped, clamped tight and hunched, as she turns her face towards me, “Horrid Henry wouldn’t last five seconds in our household!” Although the boys give every impression of oblivion, they both manage to chime in perfectly, every time the story reader says ‘Stop it Henry! Don’t be horrid!’ My daughter rolls her eyes with exasperation.

“Whadif they won’t talk when we get there?”
“Lets just hope they have their ‘listening ears.’”
“Whadif they say something unfortunate?”
“I don’t suppose it will be anything they’ve not heard before, or a variation on a theme.”
She pushes herself back into the headrest and shuts her eyes.
“I don’t know whichis worse, when they scream or sing that darned song.”
“MANAMANA” is definitely trying, but at least they’re happy.”
“I jus can’t work out how they ever heard it?”
“Neither can I. It’s ancient. From the sixties, I remember my brother, your uncle, singing it.”
“Whu!”
“I can still see it. The singer was this dark character.”
“Dark?”
“Brown, and very hairy.”
“Mom!”
“He was a muppet.”
“Mom!”
“Not that kind of a muppet, a real Muppet.”
“What the heck is a muppet Mom?”
“I keep forgetting how young you are. Bit like Sesame Street puppets. I’ll show you later when we get home. Don’t suppose you’ve heard of Kermit the Frog either? Miss Piggy?”
“Whah?”
“Never mind.”
“Whadda we gonna do if they make a spectacle of themselves?”
“If they can’t make a spectacle of themselves at therapeutic riding stables for differently abled children, where can they?” I beam.
She giggles and flutters her eye-lids – wicked.

Arrive at the stables, late, with two screaming children – doesn’t give the best impression of our family. Vomit noises emanate from my youngest – farm fresh air doesn’t suit everyone, “dat is a worserer smell dan my bruvver!” He falls out of the car, wraps his arms around his skinny rib cage, and tippy toes off like a top, in the general direction of the office. His older brother staggers in the same direction, hunched like an ancient, as if every limb drags half a hundred-weight of potatoes. The pre-teen looks on, aghast, but is quickly distracted by more interesting eye candy – horses.

One whole hour of introductory, orientation.

We drive back home – the boys are out cold in the back, mentally, emotionally and physically exhausted.

“That was funny,” she giggles.
“Hmm?”
“When he said to the lady that the horses had x-ray vision and shot laser beams at him.”
“She didn’t bat an eye-lid though did she!”

I ponder.

I think of the many, many hours my daughter has endured in waiting rooms as her brothers were tortured by every conceivable variety of therapy known to mankind, while she would salivate at the window, hoping for the chance to share a few moments occupied with similar activities. She’s been short changed for far too long, just like all the other children in the Siblings book I read last week.

“So when we go next week they’ll be there for a whole four hours. Would you like to stay and watch, or shall we go and do something else, together?”
“You don’t have to stay with them?”
“Apparently not. In fact they’ll probably do better without me.”
“Four hours?”
“Well, probably 3 if we drive half an hour to somewhere and leave half an hour before to get back on time.”
“What’ll we do?”
“What would you like to do? Your treat.”
“Um…a whole three hours? I don’t know.”
“What do your friends usually do on a Saturday morning?”
“Shop.”
“Oh. Really? Sounds great. Lego Store?”
“Not without the boys – wouldn’t be fair – wouldn’t feel right.”

I drive a few more miles in silence as I watch her brain whir, from the corner of my eye. I try to think what I did, more than a decade ago? I have no recall whatsoever. Whatever it was, it’s clearly unremarkable.

“I don’t think there’s anything I wanna buy. Anyway, I owe you three weeks pocket money.”
“You do?”
“Yeah. Remember? I bought a pair of Heelies. You subbed me coz I didn’t have enough.”
“Oh. Right. What else would you like to do then?”
“The beach looked nice.”
“It did. Would you like to play on the beach?”
“Maybe. We could pack a blanket. Sit down and be quiet.”
“We could.”

It strikes me that if I sit down, static, I’m highly likely to pass out – I could win an award for sleeping if I ever had the opportunity.

“Could we take a picnic too..…with real food?”
“Absolutely.”
“No Goldfish crackers.”
“Oh go on! You like them really.”
“Spose…..I’ll take an alarm if you like?” she offers.
“An alarm?”
“In case we both fall asleep.”

p.s. I do not endorse this as being either beneficial or curative, be that cat, dog, tortoise, horse, fish or dolphin therapy, although this does appear to be an exceptionally progressive program. ‘Beneficial,’ is more than enough. Anything else is a bonus. There is the remote possibility of a little enjoyment if we’re lucky. Failing that, in any event, at the very least we shall have spent a quantity of time outside the house, otherwise referred to as the ‘cell,’ and expanded our horizons by an inch or centimetre.

* Highly recommended to improve aural processing, [and fun] but don’t blame me if your children acquire an English accent.

A bonus for the digital and tactile challenged person.

Never look a gift horse in the mouth!


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Speak for yourself – I am not a conduit

I understand some of it.

Part of it is woolly terminology.

How can it be a bathroom if it only has a shower? Why is it called a sitting room when no-one sits there? Dining room is meaningless if ‘dining’ isn’t in your vocabulary. The situation is made worse by parents who do not use language consistently – where ‘corridor’ and ‘hall’ are used interchangeably, at random. How can it be a corri’door’ when there are no doors?

Then there’s the practical matter – we live in an open plan house, where a ‘room’ may have two and a bit walls, undefined, not delineated by any visual boundary, no doors bar entry.

Part of the problem is that the name of any room is unimportant anyway – off radar.
Why is the garage a garage, when it houses a car not a gar? What about the kitch, what is it? When you leave, does it become a kitchout? Isn’t every room a family room? If you share bunks why isn’t it a bedsroom? It can’t be a spare room or guest room, and a day bed is a contradiction in terms. Only the garden is easy – out-side, enclosed by a ten-foot fence, with locked gates.

When they were little they didn’t have the words to explain the confusion. Now they do, and I’m the one that’s confused. We need a map for our own home, but we keep plodding onwards and upwards.

***

I sit on the floor with my youngest son, a pair, while the respite worker, Ms. G, sits at the table in the dining room – she’s six, stride-lengths away. Conversation is encouraged by not obligatory. I start:-
“Why don’t you tell Ms. G what happened to your sister yesterday?”
“Can’t remember.”
“Can’t remember?”
“No. You tell er.”
“I think she’d rather it about it from you. It was only yesterday.”
“Yesterday is being a very long time ago for my type of peoples.”
“What about all that drama? Tell Ms. G. She’s listening.”
“Don’t know drama.”
“Yes you do – when I had to rush off to collect her from school and take her to the doctor and you stayed at home and were very good because you used your emergency crisis behavior.”
“Oh yeah.”
“So? Tell Ms. G what happened, how she hurt her finger?”
“I don’t know. I weren’t there.”
“But we told you all about it when we got home again. Ms. G wants to hear all about it, from you.”
I look at his dead pan face.
“SIGH..Basketball is a blood sport?”
“Not that bit, anyway, don’t tell me. Tell Ms. G. Remember what we talked about? Being polite. When someone’s in the same room, include them, address them directly.”
“But she ain’t in the same room.”

I look across expanse, from the open plan sitting room, to the open plan dining room where a silent Ms. G observes and grins at me.

Sometimes I’m tempted to run away and hide amongst the filing cabinets in dad’s home off’ence.’

Quite a long time ago, we used a lot of PEC’s. We still use them as scaffolding. You can buy them from lots of different place and make your own to be more carefully taylored to your own child’s specific needs, however, I can across a new place where you can buy them over here as part of the Autism Network – especially handy if you happen to be UK side.


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Medicine that won’t go down

It’s a common phenomenon for many of us with children on the spectrum – those pesky fine and gross motor skills, with a dash of scattered sequencing and a dollop of mis-matched motivation – a recipe for disaster if ever I heard one.

They come to the fore every mealtime to taunt and tangle with us. Although we persevere with cutlery my children insist that everything is finger food. Let’s be honest here, how many other parents, cooks and nutritionists also have to factor in ‘splash, spill and ping,’ distance into their calculations? But they keep getting bigger, so something must be reaching their intestines, one way or another. Just lately, it’s ‘another,’ because although they don’t conform to the conventional, they’re nothing if not inventive.

So if you find your dry Cheerios just refuse to co-operate with a fiddly spoon – this might prove to be a good alternative.

Sorry it’s been so quite around here lately but it’s a bit fraught with “Nonna.”


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An Experiment

It is a well documented phenomenon:-

a youthful individual has a mishap on the play-ground and the autistic child nearby laughs.

Remember that one?

We could of course go into lengthy explanations as to why this should be so, sometimes, with some children – how some emotions, or rather the expression of those emotions, can flip over to their exact opposite – a trip switch.

Frequently, these explanations don’t ring true.

This is usually for one of two reasons.

The first reason is when the speaker uses too much jargon, so the listener falls asleep from boredom, not that they were very interested in the first place.

The second, because the explanation is too simplistic, just not good enough to be convincing.

Anyone you know still need convincing?

Here’s my version of convincing.

A small autistic child is depressed – bear with me here, I know few people believe depression is possible in a child – a credibility gap – but it really is true.

So, where were we?

Ah yes, a small sad person comes to you; they’ve been encouraged to express their emotions, not bottle them all up. The small sad person has acquired words, lots of them. The delivery is often a bit dicky but it’s still a vast improvement. The listener must be patient as the child gains confidence, builds up to the moment. They cannot be hurried. Use prompts judiciously. There may be several false starts and sputters. There can be many ways of expressing hurt feelings, feelings of self-loathing and poor self esteem – many parents are familiar with these too. ‘Negative talk’ is another common phenomenon in autism. Because they are children, the terminology may differ from adult versions on the same subject. The listener must adjust to age appropriateness, calibrate carefully, tune in to any special areas of need. It’s a serious business for us, as we wallow in his ‘cat phase,’ of development, no jokes allows. We must step into their shoes, see the world from their perspective, their sensitivities. Under no circumstances should the child’s concerns be trivialized, dismissed or belittled, no matter what. Sincerity and an open mind are essential elements of being a coach to the sufferer in their time of need, so that when that sweet innocent appears before me, lifts his fragile chin and turns his pale liquid eyes towards mine, fear, pain and suffering etched into the tiny creases at the corners, beneath a curtain of silky dye cut hair and parts those soft cherubic lips to announce:-

“I’m …..I’m …bad….real bad…..really, really bad…I’m as bad…..as bad ……as bad as a pile of dog poo!”

Don’t you dare laugh.


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Contractions can be tricky

I nip upstairs to check progress, or lack there of.  He stands in the middle of the bedroom, without stitches, surrounded by every shirt he owns, piled up on the carpet in heaps the size of  earthworks, as well as his brother’s, a solid mass, indistinguishable, an impenetrable mountain range.  But that’s only in my mind, an exaggeration, really there’s only half a dozen.  It’s a metaphorical mountain and a distraction to the main event.  The main event is to have my son dressed and sequenced through his daily routine in time for the school bus.  However, this goal may be hijacked by other competing campaigns: self-care, personal responsibility, natural consequences for actions.  I dither.  I estimate that on a good day, without any other distractions or pressures, it would be possible to put one, maybe two shirts back on their hangers and into the closet, but that has to be balanced against the amount of time expended on a task that’s unlikely to be completed, could well result in major upsets and quite possibly destroy any possible of the first goal – ready of the bus.  Speech and communication has always been the priority, reduce frustration, enhance understanding, but they’re bigger now, in a different place, way further along the road, and someone keeps moving the goalposts. In the midst of my indecision, he speaks.

‘It ate my shirt.’

‘I beg your pardon?’

He holds a tan colored top in one hand, blinking at the design on the front.

‘It ate my shirt.’

‘What are you saying.’

He flaps it towards me, but I’m a bit slow on the uptake distracted by his feet trampling the other clean shirts strewn across the room.

‘It ate my shirt.’

‘Who……or what ate your shirt?’

It’s almost a dance now as he travels around the perimeter waving the shirt.

‘It ate my shirt.’

‘That’s what I thought you said.  Doesn’t look like it to me.  You’re saying that this shirt, ate your other shirt, or shirts, or what?’

He stops for a moment, still, static and startled, as something clicks into place.  He looks at the shirt and then at me.

‘Oh no, I meant…….it’s her shirt…..it ain’t my shirt.’

‘Fabulous.  That’s much better.’

So  stunned by the percolation of the missing ‘n,’ I leave stuffy shirts for another day.  [diction]

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