From Anxiety to Meltdown How Individuals on the Autism Spectrum Deal with Anxiety, Experience Meltdowns, Manifest Tantrums, and How You Can Intervene Effectively Deborah Lipsky

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Deborah Lipsky, the self dubbed Raccoon Lady, has written a must read for people like me.  People like me with children on the spectrum are apt to sit on my children’s shoulders and try to examine the insides of their heads.  It is a less than perfect arrangement.  More often than not, what with the speech delays and such, my translations are usually just my best guess with a dollop of wishful thinking.

So here, Deborah provides great insight into the thought processes and thinking patterns applicable to many people on the spectrum.  Her perspective may not be unique, in that there are lots of other autistic people with similar viewpoints, but the trouble is that not enough of them have written a book about it to enlighten us.  So here is the opportunity.

 

I particularly warm to her distinction between a meltdown and a tantrum, but that is probably because I agree with her.  You may well think otherwise, as you are entitled to, once you have read the book.

 

Her insights, tips and approach should prove invaluable to many, but for me, I was particularly interested to read about the interplay between anxiety, OCD, stress and how these elements can affect someone in their adult life.  Her account provides ample evidence about the importance of intervention early in life, to provide our children with as many coping mechanisms as possible, as well as the need to teach and practice flexible thinking.

 

I was delighted to read about Deborah’s challenging and fulfilling life, which I’m sure will prove inspirational to both parents and autistic children.  It would be far too sweeping to say, ‘Nothing holds you back except the limits imposed by yourself,’ but the impulse to self-censure is a commonplace part of the human condition.

p.s. lastly, I would like to add a request, namely, that a sequel might look at another black and white issue:  depression, autism and the mire of inertia.  How can parents intervene effectively?

 

Available from JKP.

 

And you can visit Deborah Lipsky here.

 

P.s.  Added later – thanks to Trish for this link where you can hear and see Deborah lecture where you can get a flavor of her wit and wisdom.


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My Parent has an Autism Spectrum Disorder A Workbook for Children and Teens Barbara R. Lester

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A Book Review

This is a great book for anyone starting a journey of discovery following a diagnoses of autism.  It may seem curious at first to know that an adult, and in this case a parent, has been diagnosed with autism, but it is becoming far more commonplace than we might ever have imagined a few years ago, which makes this book especially timely.

Written with teenagers and young people in mind, Barbara writes with a casual, warm and approachable style which avoids being patronizing.  When she uses a term which may be unfamiliar to her audience, she also includes a simple definition of the word which greatly helps the flow and understanding of the reader.

The book is divided into chapters covering the primary issues which will be of interest and importance to any young person trying to understand their parent.  She writes sympathetically to both parent and child discussing many of the common concerns and worries of young people to aid understanding and empathy.

I particularly liked the style of worksheets in that they are brief and on point.  Also the idea that both parent and child work on the same questions and issues should be illuminating for both parties.

Barbara illustrates the text with examples of her own experiences with her ASD father which helps clarify the condition and provides ample proof that she has lived through, survived and thrived what many others are also experiencing.

My only issue with this book is the usual one:- how to reach the people who most need it?  In this particular instance, that may prove to be a diplomatic nightmare.

The books ends with a brief discussion about the stigma associated with autism but the finale, for me at least, was a worksheet where both parent and child can list their strengths – although there should be an extra blank page to allow for a run on : )

You can check out Barbara R Lester here.

Available from JKP.

I’m just about to try out one of her apps from itunes on depression since it’s a subject I know nothing about and have two candidates in different generations to practice upon.


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Something Different about Dad

Written by Kirsti Evans and Illustrated by John Swogger, published by Jessica Kingsley Publishers

This book is aimed at young people between the ages of 7 and 15 who have a parent or other adult in their lives with Asperger Syndrome and is styled and designed to meet that need.  As the writer explains it should act as a springboard to further discussion, a tool to break the ice and provide a starting point.

Today, before posting, I have read this book through a third time, just to make sure.

To begin with it’s important to recognize the first two characters, Kirsti and John.  They are important because they pop up later in the book, sprinkled here and there to explain what is going on in the stories.  This point wasn’t immediately clear to me, so I just thought I’d mention it.  Their role could be described as narrators, to clarify aspects of the scenarios.

The book is presented in a casual comic book style and has a comfortable air about it due in part to the font of the typeface and more importantly, the illustrations.  To me, the pictures are a stylized combination of cartoon, anime and manga.  This is great because it makes them familiar and accessible to most young people and it is their very neutrality that makes them universally applicable–the reader can superimpose or imagine their own relative in the place of the characters presented.

One particularly helpful element which could prove useful to many people is the illustration on page 29 [in my copy].  This highlights four aspects of  Asperger Syndrome:  imagination, communication, the senses and emotions, and relationships.  Each one is associated with an icon, a bit like a PEC but the visual works like a shorthand or  short-cut to help someone recall areas which can cause difficulties.

The book provides a number of scenes of everyday family life where everything does not go according to plan.  They focus on different family members in turn.  They are lengthy and detailed but should strike a chord of familiarity.  On completion of each ‘story,’ the narrators untangle the scene to discover what went wrong and why, and more importantly, how the situation could be handled differently in the future.

From this you can tell this book could be a very useful tool, especially because of the positive aspect of ‘how could we do this better.’

If it sounds as if I have reservations you would be right, but this is because the subject matter is complex.  It is difficult to make a complex subject easier to understand.  Simplification is a challenge but necessary–how else could we explain Asperger Syndrome to a youngster?

On the other hand, for the young reader, this book covers any number of sophisticated issues.  Throughout the book something nagged at me, but I couldn’t pin point what it was until I came to the last ‘story.’  Number 6 is called:- ‘What about me?’ where the son of the family takes center stage.  Here he voices what worried me. The book focuses on helping children understand their parent or adult friend with Asperger Syndrome.  It  helps a child look at the situation differently and learn new approaches to reduce future conflict, all of which is great, but it’s asking a lot of that child, any child.  I know these days we are often accused of being too child focused but there is also the accusation that parents are too ‘me–selfish–my time’ obsessed as well.

But that would be only one small blip in an otherwise very useful and sensitively constructed book.  The first thirty plus pages explain many of the aspects of Asperger Syndrome in an illustrative and interesting manner but younger readers may struggle here.  A great deal depends upon the age of the reader and their level of sophistication.  If I were a parent in that situation, I would read the book in it’s entirety and then select one story that best suited my families circumstances for my child to read, preferably together, especially if ‘attention span,’ is an issue.

I would congratulate the authors for producing a well thought out, wonderfully illustrated book which has broken new ground– an exciting new trend–hope it becomes a series? [hint, hint]

p.s. Spoiler alert / warning:-

Some more eagle eyed readers may be able to spot something which bears a remarkable resemblance to a clown face in a wall poster decorating one of the character’s bedroom.

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