Oral Defensiveness – once bitten, twice shy

This is one feature of my youngest son. On the whole, he refuses all 'new' foods. A few of years back, my older son, who is also autistic, had a play date with his chum, a typically developing twin. This fully verbal child had energy, enough to spark my child into action. There were few words between them as they spent the majority of their time wrestling. [translation = roughhousing.] These two five year olds 'played,' until snack time, when all four came to the table. At this time junior only “ate three things,” but we seem to have been working on this forever.

Very occasionally, approximately once or twice a year, he would snatch food from someone else's plate, stuff it in his mouth and then promptly spit it out again, with accompanying screams.

The friend immediately noticed that junior had a bowl of Goldfish, but not the fruit and chocolate chip cookie that everyone else had.
“How come he doesn't get any?” he asked immediately.
“He dun like it,” offered his brother, as both boys have speech delays. His friend was not convinced, so I backed him up, “that's right, he doesn't like cookies, but he really hates chocolate chip ones.” His eyes narrowed in the knowledge that he had caught an adult in a lie.

The snack continued. The friend decided that there was a conspiracy afoot and so asked him directly, “do you want one?” Junior rarely responded to questions verbally or otherwise. On this occasion, his response was to shade his eyes like a visor and lower his head, so that the vision of the cookies would be obliterated. The friend asked again, louder this time. My son squashed his nose onto the table cloth so as to close his nostrils from the stench of the cookies. The friend glanced in my direction, a quick check to see if the coast was clear. I decided to let nature take it's course.

“Here, just give it a try. Everyone likes cookies. These are the best. You'll like them.” Junior squirmed in his chair, became more compact, smaller. “Come on. You'll love em,” he persisted. Junior curled himself into a nut, the smallest hamster in the world, invisible. “Hey! What's wrong with you? Eat it!” he commanded waving a cookie at junior's posterior. He tried a new tactic. “I know, if you eat this cookie then I'll give you a………” He faultered, perplexed. “Eat this cookie and then you can go and play.” It was a nice try, but was the wrong lure, indeed I was a little short on lures myself. I waited, fascinated. “Eat it now or you'll go straight to bed without any……” I suppressed all nerve endings to ensure that my face remained neutral. Those tired old phrases each came out, one after another, all of them. They're the words that parents have been saying since children were invented.

Junior unfurled just enough to allow his tentacle of a arm to reach up to the table for another handful of goldfish. The friend wrenched the bowl away, lay on the table and dangled his own arm like a fishing line, in front of junior's nose. The cookie waved back and forth, “come on, you can do it, I know you can, just a little bit…..” junior snapped at the cookie and bit off a chunk. It was so fast that the fisherman flinched, sprang back and retracted his arm at the same second that junior exploded like a jumping jack, caterwauling at 50 decibels, hands frantically scraping cookie crumbs out his mouth before running to the faucet to wash the inside of his mouth. The friend watched mesmerized, as junior drowned and gurgled under the flow of water, ripped off all his clothes and hurtled away to hide.

The friend was a statue, eyes like saucers, his body rigid, at attention. He relaxed, lost his stupefied look to add, “he really doesn't like cookies does he?”

I assumed it was rhetorical.


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The Rampant Axe Murderer visits

“MUMMY!” he hollers. I scramble into the other room as his voice would indicate that someone has stabbed him with a lethal weapon. He is seated on a high stool playing his allotted 30 minute of Gamecube. My eyes check him over but there do not appear to be any lacerations, gaping wounds or gashes, nor any fountains of blood. His eyes are still glued to the screen as I enquire, “what is it dear!”
“'Emperor' and 'remember' rhyme!” he yells at fifty decibels, his voice directed at the television screen. I look at the screen, “did you read that? Is that what the game is about? Are you stuck? Do you need an emperor or something?” I ask, beginning to ramble.
“No, nuffink like dat. I am just telling you fings. You are happy when I am telling you dah fings.”
I am? Is this what 'happiness' is supposed to feel like? Heart pounds, dry mouth, goldfish gasping, sweaty palms and racing mind, if not brain. Did I say that? Oh yes, that's one of the things I've been saying for a few years now, reinforcing the occasional splinter of information offered, but nobody ever takes any notice. It would appear that his modulation and regulation are out of whack. [translation = his response is not appropriate, an over-reaction]

I attempt reinforcement, acknowledgment of his sterling efforts to put into practice what I have been preaching at him. “Well, thank you so much for telling me that,” not the best word choice, but a positive hearty tone, accompanied by a shunned hug. Although he won’t permit his attention to be distracted by a cuddle, he does manage the verbal, “yur welcum!”

It would appear that I need to recalibrate my own 'alert' system too. Is anyone really “normal?” If he is on a path to sharing information with me, in a voluntary manner, in a tone reminiscent of 'duck and cover,' I don't know if my sensory will stand the strain. All this progress can be a bit much for some “feeble minded parents.”

And there was me thinking that he was the hyper-vigilant one! Maybe I just need to tweak my ‘fight or flight’ response.

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